SINDERELLA'S BALL

ON OUR WAY TO ANOTHER MILLION WAYS TO SUPPORT ALS PATIENTS!

As we embark on the 13th Annual Sinderella’s Ball Campaign, I’d like to share with you a heartwarming letter, one of many we receive, from the spouse of a couple who bravely faced the debilitating conditions of ALS side by side. It highlights the profound impact we can have in transforming a devastating diagnosis into a journey of support and resilience for those who endure such hardships.

“I am writing this with a heart filled with sorrow, sadness and gratitude. I share this testimony in honor of my beloved husband … the love of my life for 48 years.

… On March 18, 2025, we went to see a doctor …. When the exam was finished, we were informed that it looked like my husband had ALS. The battle with ALS was one of the greatest challenges our family ever faced, but it was also a journey that revealed the extraordinary kindness, compassion, and love of so many people.

… During this difficult journey, the Joan Dancy Foundation became like family. They were a true blessing to us. Their compassion and generosity went far beyond providing equipment. They gave us hope when we felt overwhelmed, guidance when we felt uncertain, and reassurance that we were NOT walking this path alone.

… Every act of kindness that Joan Dancy gave allowed my husband to live with greater comfort and dignity. Their compassion touched our lives in many ways we will never forget.”

According to the ALS Association, every 90 minutes, someone receives the devastating news that they have ALS.

Lou Gehrig’s disease diagnosis profoundly impacts individuals and families. Rapidly progressing symptoms lead to mobility decline and a deteriorating quality of life. The incurable diagnosis and overwhelming medical expenses create constant upheaval for ALS patients and their families.

ALS patients face the daunting prospect of living without new treatments due to the lack of a cure. With their loved ones’ support, they hope for slow symptom progression, but ALS complications worsen, limiting their options for managing their condition.

The Joan Dancy & pALS Foundation provides steady support to ALS patients and their families, ensuring they receive the best possible care during this challenging journey. By offering medical equipment, nursing care, support groups, and recreational activities, the Foundation has significantly enhanced the quality of life for over a thousand individuals affected by ALS. Notably, it serves as a lifeline during extremely difficult times.

The very good news is that we are making substantial progress in raising a second million dollars to support the Joan Dancy & pALS Foundation. Many of you so generously contributed to our efforts in raising the first $1.25 million dollars! Ninety-six cents of every dollar you helped us raise directly supports the needs of ALS patients.

Since 2014, we have hosted our annual Sinderella’s Ball, first at the Wonder Bar and now at the renowned Stone Pony, both in Asbury Park, NJ. This event is dedicated to raising funds for the Joan Dancy & pALS Foundation’s mission. Sinderella’s Ball is a heartfelt tribute to my wife, Sindy, who tragically passed away after a seven-year battle with ALS in 2017.

The untiring support and kindness shown by all of you over the years has not only helped preserve Sindy’s memory but has also provided invaluable services to other families affected by this devastating disease.

We cordially invite you to join us December 5, 2026, on our ongoing journey by supporting the 13th Annual Sinderella’s Ball at the Stone Pony. This event like all the others promises to be even more spectacular, featuring a memorable evening of rock and roll by top notch bands. And, as always, there will be many surprises too!

Join champions of giving who support those battling the disease.

At any time of the year, we kindly request your support. Your contributions enable us to raise awareness and secure funds for vital services, including home visits by our Foundation’s nurse and social worker, support groups, medical equipment procurement, and financial assistance. These programs profoundly enhance the quality of life for ALS patients and their families, offering moments of relief and enjoyment amidst the immense challenges and hardships they face.

We sincerely appreciate your thoughtful consideration and extend our heartfelt gratitude for your ongoing support. We are honored to continue providing moments of peace, joy, and dignity to the lives of ALS patients.

Sincerely,
Louis Weiner

Co-Founder, Sinderella’s Ball
Trustee, Joan Dancy & pALS Foundation

Please watch the video below to see what it is like to live with ALS.